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Why have an autopsy?
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It is still the only way to prove a diagnosis of Alzheimer’s disease. While most diagnoses of Alzheimer’s disease are confirmed with autopsy, a small percentage are found to have been misdiagnosed. Additionally, some individuals have several disorders and autopsy provides the family with information they would not otherwise know. This informs future generations of valuable medical history, particularly as research is searching for genetic links to this disease.
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What type of autopsy is needed?
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To confirm a diagnosis of Alzheimer’s disease or a related dementia only a brain autopsy is needed.
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Who may request an autopsy?
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Ideally the diagnosed person will have made their autopsy wishes known when they were able. Otherwise the next-of-kin or the guardian can legally make this decision.
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When should autopsy plans be made?
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Plans should be made well ahead of the individual’s death. Arranging for autopsy requires coordination between the family, the physician, the institution performing the autopsy and the funeral home. There may not be adequate time or energy at the time of death if plans are not made ahead of time.
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Is an open casket possible?
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Yes, the removal of brain tissue does not leave any disfigurement.
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Can body organs of an Alzheimer patient be donated for transplant?
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The Alzheimer’s Association recommends against organ donation because the causes of this disease are still not known.
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Where are autopsies performed?
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At a hospital where the pathologist is knowledgeable about making this diagnosis, has the necessary equipment and is willing to perform the autopsy. The National Capital Area has detailed information about restrictions, costs, and availabilty of autopsy in the chapter territory. Call the Helpline: 703-359-4440 or toll-free 1-800-272-3900.
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What is the cost of autopsy?
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This varies with each hospital. If the diagnosed person dies in the hospital, many hospitals will perform an autopsy at no charge.
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Will this information add to research?
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A autopsy at a local hospital will provide a diagnosis of Alzheimer’s disease as an underlying cause of death (it is still not recognized as a primary cause of death). This does assist in adding to accurate documentation as to the prevalence of this disease.
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In the National Capital Area chapter service territory, for more information about
Autopsy, please contact the Chapter's telephone Helpline at 703-359-4440 or toll-free 1-800-272-3900. Outside the National Capital Area, please contact your local Chapter.
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© 1997 - 2005 Alzheimer's Association, National Capital Area. All rights reserved.
703-359-4440 or toll-free 1-800-272-3900
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